Mission AND vision
Why we exist and what we strive to change.
Our
mission
Our mission is to enable the development of the first effective treatment for GAND and to improve the quality of life for children and families living with this diagnosis.
Founded from a personal story and a parental decision not to accept the absence of solutions, GAND Foundation brings together science, expertise, and solidarity. We raise funds for research, connect specialists nationally and internationally, and give a voice to children who often do not have one.
Our
vision
We envision a world where a diagnosis of a rare genetic disease does not mark the end of hope, but the beginning of a path toward solutions.
We strive for:
the development of a safe and accessible therapy for GAND,
earlier recognition and diagnosis of rare genetic diseases,
stronger connections between healthcare, science, and patient needs,
support for parents when they need it most.
In the long term, we aim for the foundation to serve as a bridge between families, professionals, and society — and as an example of how community can change the course of even the rarest diseases.
Our
values
Hope
even when the path ahead is uncertain
Responsibility
toward donors, children, and science
Collaboration
because meaningful change is never achieved alone
Courage
to persist where there are no easy answers
Humanity
because behind every diagnosis is a child with a name