Natural history of GAND
How GAND typically affects development over time.
GAND is a congenital condition, meaning it is present from birth. However, its features become more apparent over time.
During early childhood, children often experience delayed motor development, hypotonia, delayed or absent speech, and coordination difficulties.
As children grow, learning challenges, communication difficulties, and sensory differences may become more pronounced. Importantly, GAND is not a degenerative disorder. Skills are generally not lost over time.
Development across the lifespan
The role of therapy
Therapies such as physiotherapy, occupational therapy, speech and language therapy, and specialized educational support play a crucial role in maximizing development and independence.
Although there is currently no cure, individuals with GAND can continue to acquire new skills throughout life, particularly with consistent, targeted support.
Why
early diagnosis matters
Early and accurate diagnosis allows families to access appropriate therapies, gain a clearer understanding of their child’s condition, and participate in research initiatives.
For families affected by GAND, diagnosis is not the end of the journey, but the beginning of understanding, connection, and hope.