FOUNDATION NEWS
FOUNDATION NEWS
PUBLISHED 27 OCTOBER 2026
GAND FOUNDATION AT A RARE DISEASES ROUNDTABLE
Connecting Knowledge, Healthcare Professionals and Families
On 22 October 2026, the University of Novo mesto hosted a roundtable discussion titled “From Knowledge to Empowerment: Innovative Education on Rare Diseases for Different Target Groups.”
The event marked the conclusion of an educational programme on rare diseases, bringing together healthcare professionals, experts and representatives of patient organizations.
Jernej Blatnik, founder of the GAND Foundation, participated in the discussion, sharing the perspective of families affected by rare genetic conditions.
The discussion focused on the importance of early recognition and diagnosis, stronger collaboration between healthcare professionals, patients and their families, and the role of education in improving care for people living with rare diseases.
For the GAND Foundation, participating in conversations like these is an important opportunity to raise awareness, strengthen connections and contribute to a better understanding of the challenges faced by families affected by rare diseases.
Together, we can build a more informed, connected and supportive future for the rare disease community.
Event organized by the Faculty of Health Sciences, University of Novo mesto.
Source: Faculty of Health Sciences Novo mesto (Facebook, October 2026).
We are pleased to announce that registration is now open for the GAND Syndrome Conference, taking place in Barcelona, Spain, on June 16, 2026.
The conference will bring together leading scientists and researchers currently working on gene therapy approaches for GAND syndrome.
At the end of the presentations, attendees will have the opportunity to participate in a live roundtable discussion, ask questions, and connect directly with the researchers.
GAND Syndrome Conference 2026
EVENT INFORMATION
Ticket Payment & Event Information
https://givebutter.com/gene2cure-foundation-translational-gene-therapy-conference-2026-it9s8m
Event Registration
https://docs.google.com/forms/d/e/1FAIpQLSeoWPvmMxKX3zEpKo_nC7ZyG2GO0mEOMIrQ2efaUcWtdqMxyg/viewform
Conference Date
June 16, 2026
Location
Barcelona, Spain
REAL-TIME TRANSLATION IN 60+ LANGUAGES
We are excited to introduce a new accessibility feature for this year’s conference: real-time translation and transcription for all presentations.
Using Worldly technology, participants will be able to follow the conference live in their preferred language directly from their phone or tablet.
How it works
Scan the QR code displayed at the event
Or open the access link sent by email
Follow presentations with live captions or voice translation
You can also connect headphones for a seamless listening experience.
WHAT TO EXPECT
✔ Real-time translation in 60+ languages
✔ Live captions and audio translation
✔ Easy access through your phone or tablet
✔ Saved transcripts for future translated conference videos
We look forward to welcoming families, researchers, clinicians, and supporters from around the world as we continue advancing gene therapy research for GAND syndrome.